Friday, 7 September 2012

Do I need to slow down? No way!

Gosh, over a year since I've blogged!  Still here!?!

The athletic's season has taken over my summer - and maybe the family's too - but this weekend, sees the end of "track" 2012. I was gently pushed into working towards being a Level 3 timekeeper back in May, and having been "reported" on as a "chief" during a very hot and sunny day in April at the gorgeous track in Eton, where I looked after (!) the timekeepers during the second day of the International Schools Championships, I decided it wasn't such a bad idea.

ATHLETICS

It takes a minimum of two years and six reports. So one down. The other 5 reports (this is when you are literally followed, assessed and a written report made out) have to be:-  1.  show you can read photofinish (tomorrow).  2. Clerk of Course - a very physical role making sure all the correct equipment is in the right place at the right time etc. 3 & 4 - reports on me as a timekeeper and in my county or region is ok (know the rules & regs, keep within .05 error at end of day, with only a few .1+ errors allowed - that is hundreds and tenths of a second).  5.  Be reported on as a timekeeper (as opposed a chief) by an "out of region" chief - from the Midlands or North of England.  Not sure how I'll go about no. 5, but I'll come up with something!

ENDURANCE
Ok. So track finishes, but as of January 2012, I became an Endurance Official too. And Endurance starts as Track finishes... Endurance being road races, cross country and multi terrain. Just a Level 2a right now, and working towards a 2b. For a timekeeper to do this is difficult because you have to gain lots of varying "experiences" - marshaling part of a course, running an event etc etc - and when there aren't many cross country timekeepers, you know that the first job everyone will ask you to do...timekeeping! 

OTHER STUFF...
The first torch bearer, Redhill

Earlier this year I joined a team to marshal the Olympic Torch as it passed through Redhill.  Little N helped too, but it was rather funny because we were put on crowd control where there were no people...  Next week is the "Tour of Britain", and again our local council will be arranging marshals which I have volunteered to do. Wonder what they'll have me doing this time!?

Also this year I helped out at the London 10k which started and finished in The Mall as the Olympic Marathon was to.
Recognise the winner?
 
 
And we enjoyed a picnic on Picadilly to celebrate the Queen's Golden Jubilee.

OLYMPICS
On the Monday before the Olympics started, I was very lucky to be given a ticket to a practice session of the Olympic Opening Ceremony.  WOW! It was just amazing.
The Industrial Revolution


 The NHS and GOSH

Party House!

And then I just HAD to see something, so in the first ballot, Little N and I were lucky enough to get 2 tickets to they Sync Swim.



LISTEN (at King's)
In January 2012, I stepped down as Chair of LISTEN. When I first agreed to take on the role I said I'd do it for a year, but 3 years later and I was still there. I haven't left the committee, but the day to day duties now land on the shoulders of Mr Vaux.  There have been numerous political issues that we've got involved with, mainly the reallocation of liver organs to donors. NHSBT and LAG (Liver Advisory Group) set up, a few years ago, a meeting for liver disease support groups from around the country. LISTEN supports all diseases around the transplant process. I won't bore you with this, but it was exceedingly interesting and very controversial, and for the moment, I think the result is what we want.

I've also continued to do ward visits and mentor patients this year. I think, as someone else mentioned this week, that we get just as much out of talking to such inspirational characters, as they do meeting a "healthy transplantee".  I seem to now be doing a ward visit once a month and mentoring at the group support monthly too, so my visits to King's has reduced a little. The committee meetings we try to fit in with other meetings, so when there is "Group" or a few of us on ward visits. 

This year, as it isn't run every year, was the King's Open Day.  A great day out for kids especially, but lots to learn for the adults too, with all the departments of the hospital having a representation. Lots of activities for kids including being plastered (and yes Little N did just that...at 17), and lots of freebies and games. I took my turn with the other mentors to talk to people about LISTEN. Really great fun!



KIDS
Master A came home from uni for the summer and next week, will finish his summer stint at Chessington World of Adventures, or as my parents remember it, "Chessington Zoo".  Next weekend we (as many parents) will be taking him back to uni, where this time he is sharing a house off campus, with 2 lads from Dartford.  I think they'll have a ball!

Little N next week starts her A'level year (A2s).  Photography, Englist Lit & Lang, Art & Design (Fashion). She's also got a 2nd interview at New Look, so 2012/13 could be a very different and busy year for her!

SUMMER
Not the season - the dog!  Summer and Harris are still in love.  But now Summer has had all her DNA, hip and eye tests done, we're ready to find a Sire for her, and Harris has had the chop!  Next Spring could bring lots of Summers!!!
 My lovely friend Judy, with my Summer (left) and her Harris (right)

Summer is an enternal joy for all of us.  If I'm out of the house for even an hour, she goes crazy excited when I get home. This is much better than teenage grunts, I can tell you!!  She also goes quite mad when she see's Aunty Steph and Aunty Tracy, who she met the very first week we bought her home - three years ago.  She also rather loves her Aunty Naomi who brings her treats.  But when she sees Harris!  Well, everytime is like all her Christmas's have come at once (and she rather loves her cuddles with Aunty Judy and Uncle Rob...  Oh dear, what do I sound like?

ME
I feel fine. But then I only ever realise I didn't, when I feel fine!  I've had a biopsy and MRCP following erratic blood results this year, but then everything settles on its own with no intervention.  Quite a few steroids, but that's it. So in all, I'd say all is very good.


Thursday, 16 June 2011

The title is the hardest thing..

Every blog entry you write you're supposed to give it a title. I'm hopeless at thinking up good ones!

But that aside...

LIVER, LISTEN & KINGS

...I have spent the last two days on various visits at King's, but today was the day for me.

Yesterday was ward visit day and it was great to have company. It was a long afternoon - very rewarding - but just as exhausting. We met people just being put onto the transplant waiting list, people who had recently been transplanted and people who had been on the transplant waiting list for some time. We finally got our photo id cards and progressed with the CRB checks (got one for UKA, need another for NHS).

Today was bloods day. I wanted to find out what I'm to expect with my "funny" bloods, and the long and the short of it is that I need to have a biopsy to get a precise diagnosis. I saw one of the top guys and I really pushed to know more, but unfortunately my current story isn't text book (boom boom)...

DOGGGGG

Had two excellent walks but today I went up Flower Lane near Godstone and walked through the woods with two dog walking friends and their pooches close to Woldingham School. Yes, Mad Dog and I met with her woof love, Harris - and their little bichon frise pal, Charlie.




Short and sweet for today. A good few days. Need a little rest...!!!

Monday, 6 June 2011

I haven't forgotten...

I was reminded today that I haven't updated my blog for a few months, so what has been happening?


HOME

Our house is exam city right now, with GCSEs and A levels at their most stressful. Not helped by a carpenter taking over the whole of our ground floor (it's only a little house) to build our long awaited for cupboards. Yay - storage space at last!!


I think the kids are coping better than I am with the exam stuff. Well you know, "get off facebook", "are you on facebook?", "leave your phone downstairs", "have you eaten", "have you had a drink", "stop playing with the dog and concentrate!!" Actually, I'm not that bad. All I ask from the GCSEs (which are almost finished) is a small period of focused concentration, with breaks, then chill. But if the phone, tv, dog, get in the way.... A level boy is old enough to sort himself out. I won't be at university to check up on him (well that's what he thinks!!)...lol


LISTEN

It's been an amazing year for LISTEN. Our big push to raise the profile of our mentoring services within King's is really paying off, and it's now quite easy to spend around 6 hours each Wednesday at the hospital meeting referals, talking to groups, catching up with the staff and checking out our Lodge accommodation. Fantastic!


The committee meets once a month, but I'm in contact with the members at least every few days or so depending on what is going on.


I have rewritten the LISTEN leaflet which is just going through its final stages of proofing, and there may be some help with the future Newsletters which I hope we can do soon.


FUNDRAISING

I can't take any credit for fundraising this year, but wow, there are some fantastic people out there doing some amazing stuff for LISTEN. Chris, I've spoken about before, is still set to fly his cesna plane from Cape Cod to Cape Horn, some tens of thousands of miles, in Dec 2011-Mar 2012. And Andy Strachan, transplanted only in December, will be running 10k on July 10th. The Ladies of Caterham Rotary raised loads from a dance evening, and a quizz night, also in Caterham, recently raised around £600.


OFFICIATING


My approach to timekeeping has been a lot more relaxed this year. I've done plenty of it, in fact sometimes a little too much, but maybe because I've got a little more experience under my belt I just take each meeting with a calm approach and hope that I'm doing the best I can. For those new to this "sport", the precission of your timekeeping is measured by hundredths of a second with the widest "error" accepted throughout a whole day of races (sometime over 100 races) just 500th of a second. My "errors" this year over a day range from 3.54 (super excellent) to just over 5 (good, but should do better!).


I want to go up to the next grade of officiating but consisently need to keep my errors below 5. All great if the starter signal is good - but that's not always the case...


This weekend is the Surrey Schools Championships. This is a really long day in Kingston. Having competed in local district sports, the top 1-3 in each event, go forward to represent their district. Little N is doing the triple jump for South Surrey.


HEALTH

Interesting at the moment. I feel fine. Tired but absolutely fine. I am waiting for a date for a biopsy to see what my lovely liver is doing as its not totally happy at the moment. No worries. I'm so well looked after and have great support. No worries.


MAD DOG

Well Mad Dog failed her Kennel Club Gold award. Aaaaah. I knew she wasn't ready and she passed everything - except the very last. This was being shut in a stable with the door closed. Oh dear. Howl, cry, bark. She was not happy. Instand FAIL.


Not to give up, we now join the next group training for gold every 2-3 weeks, and hope that she will do it soon. Go Summer!!!


Oh and Summer is very much in love. Meet Harris...




























Monday, 14 March 2011

LISTEN today...

I love productive meetings. Today was the monthly LISTEN meeting and the leading topics were mentoring and how we wanted to develop long term. We could certainly do with more hands on board, creative and handyman type people, but I love the team we have and I think our personalities and skills compliament each other well.

The committee are currently trialing mentoring at King's on a regular basis - visiting the wards, liver intensive care and the LISTEN Lodges. As part of developing our skills we each have to attend an Educational session run by the pre transplant co-ordinators when patients are told they are being put on the liver transplant list. Patients and their families attend, and they are talked through the period leading up to that "wished for" telephone call to say a possible match has been found - what happens during the transplant - and a little of after too. I was "Educated" a few weeks ago.

Because of the nature of the job, we are around vulnerable people and we take this very seriously. We are lucky to have our very own "in-house" counsellor (just one of many hats he wears) and he (we know who he is!!) attends our visits with us, so we know that what we are doing and saying is correct. We never give medical advice - ever - and we visit to listen and mentor.

To become a Liver Unit Mentor we attend a days training run by the Specialist Social Worker at King's (I took my training in 2008). From meeting and listening to other support groups at liver units around the UK, it seems that we are the only group to be trained.

But as with any "job", you won't be the best unless you continue your training. So we're going to run possibly two days of workshops with talks given by medical bodies within the liver unit, full mentor training and role play etc.. This is for our current mentors and prospective mentors.

Why do this now? Our main focus for 2011 is to develop our relationship with the liver unit. We want to be in a position to offer our mentors more work than they have had and by being a larger presence in the hospital, the hope is that we will.

After just 4 weeks I think we have already been able to mentor around 400% more than previous 4 weeks. There is a lot more to this, but I won't bore you!!

Back home. Landed with a bump. A £65 dentist bill for the kids and £33 pilates bill...

Otherwise back at the ranch, Stav is in France snowboarding, Little N is beeing a teen, Mad Dog is making me laugh and Big A..taking dads absence to antagonise his sister even more... So a usual week..lol..

Tonight, I've had my pilates fix, Glee fix and watched the 2nd part of Waking the Dead. Now watching the American The Apprentice. A fab night of TV for me!!

I will be visiting the King's Charitable Trust on Thursday which is in Waterloo then having my own blood tests at Denmark Hill.