Friday 16 July 2010

In Kings..July 2010



Am back in King's - but I'm fine!



I have a stent in my bile duct. It's not unusual. Where my new liver was sewn to my "old" body, the join became scar tissue which caused a stricture (slight tightening). This in turn slowed down the flow of bile which if left untreated can cause infections and other nasties!

You can only have a bile duct stent in for about 3 months - some say 2, so having had my first in January, 2nd in March; the next was needed!

So the King's B&B is where I am! LOL... My 4th visit this year (number 3 was for the liver biopsy which diagnosed the reoccurance of AutoImmune Hepatitis).

Under general anesthetic, the procedure is done down your throat with the removal of current stent, push through some dye to check stricture (mine is now widening I am told), and re-stenting. The whole thing with no complications takes about 30 minutes I believe.

So this is where I am today. And it all went really well. I'm being soooo well looked after. The Todd Ward nurses are fantastic (so are Dawson, but on Todd today!! - haven't been to RDL for 3 1/2years, so will give feedback if there...but sure they are fantastic too)...

I was quite uncomfortable when I came round from the anesthetic but that soon wore off. I texted Stav once back in my room, to bring COFFEE (to soothe my throat)..then when he arrived, to take me for ICE LOLLY (to soothe my throat)... LOL

So have now drunk loads of coffee and finishing blog for now, before I go to sleep... Throat still sore, but with cameras and balloons stuck down it, not suprised.....are you?? he he he xx

School's nearly over...

I can't believe it's been nearly a month since I updated this blog, so in BRIEF, I will tell you what I have been up to!!

TIMEKEEPING

In the last month I have officiated at the following athletic tracks/events:-
Wimbledon Park, Kingsmeadow (Surrey Schools), Crystal Palace (was SEAA TK Steward), Sutton (a private girl's schools league), Walton, Crawley, Walton (again), Crystal Palace (as a tk at London Youth Games)...and Reigate Priory Park (RPAC Summer 10k). And I even had a few weekends off. I think my total events for this summer is around 25-30, and coming up is the Gatton 10k, SEAA at Copthall, Woking Open, possibly Crawley again but it's Bank Holiday weekend (!), and Epsom/Ewell.

LISTEN

The LISTEN committee has met up as a group at least twice in the last month as we had our SUMMER BALL, and lots of other times within the period predominantely to progress with our brand new website http://www.listenatkings.org/

The LISTEN Summer Ball took place on Saturday 26 June and I believe we took over £6000 gross. It was a beautiful evening; warm and balmy! It was held at the Bank of England Sports Ground in Roehampton which is near Richmond Park, and when we arrived champagne was served on the grass terrace which overlooks the cricket pitch (game still in progress).

There were 2 very good speeches of the 4, given by Prof Nigel Heaton and by the mother of one of the liver transplantees who got to use the LISTEN Lodge when her daughter was struck down by acute liver failure in Northern Ireland, and like me, only had hours to live. Eileen, the mother, explained what had happened to her family and how wonderful the staff at King's were/ are (hear, hear!) and how the Lodge had been a godsend. They had come over from NI just for the Ball! I wish I could thank every single person who came - it was a lovely night and the LISTEN team worked really hard - THANK YOU XXX

KINGS & LIVER


My daily little life savers!






Boxes and boxes..





I'm writing this updated blog from my bed on Todd Ward at King's College Hospital.

I last had blood tests on 10 June and my main liver enzymes were coming into the normal range (having been diagnosed with a repeat of AutoImmune Hepatitis in May), so my steroids were reduced from 30mg to 25mg for the next 2 weeks, then to 20mg, which has now been about 3 weeks I think. My hair stopped falling out, it seems, as the liver enzymes dropped and 5 weeks later, I can report that it is starting to grow back. I've said time and time again that I am lucky that I have so much hair so people that don't know me well or don't see me often won't notice the difference. It was hard for me though - and I am relieved that it was just the thickness that suffered and that I have no bald patches.

Moon face, hump and weight gain - I DO look a bit like a cartoon character right now (I have a funny picture that I will load so you can see - also hard to share).

BUT nothing hurts. I am well. I AM! Really! Since the steroids came down to 20mg, I've been tired but expect my body is just working a little harder to sort itself out...

OTHER STUFF

Well, I've spent an evening learning how to use the http://www.rpac.org.uk/ website (regarding loading results etc), have had a number of web meetings with Peter about http://www.listenatkings.org/ including spending the afternoon in a pub in Smallfields (where I'll be next Tuesday), I've met up with Emma who I used to work with at Lowcostholidays.com and who now has her own HR company.

My family welcomed Baby Kyla Frances McKenzie into the world (born 5th July 2010), spent last weekend in Lancashire for my birthday and had a super meal in Lytham on the Saturday (1oth) night - hell journey there and back though!




Nanny (my mum) and Kyla










Kyla...









My new baby cousin says Little N









My new big cousin says Kyla...













Middle Big sister Shannon, with tiny little sister Kyla and their cousin, Little N!







Stav and I went to the Biggin Hill Air Show on the day after the LISTEN Summer Ball (pictures coming) in June, and this week I met up with two friends from my first secondary school, Tudor Grange in Solihull, West Midlands.

Facebook was how we got in contact. I have known Sally Ann possibly since I was 7/8, although I think our friendship really started in the 3rd or 4th year of juniors (Greswold) and then onto the first three years at Tudor Grange Secondary School before I moved to Northampton. Margaret, I met at Tudor Grange and whilst I met Sally Ann earlier this year, I actually hadn't seen Margaret for nearly 30 years (saying it makes me feel soooo old).. I drove up to Warwick and the three of us met up together with M's 3 - nearly 4 year old, gorgeous daughter Myra. Anyone with young kids - take them for a kids meal at Pizza Express; the five course meal with babychino is superb! It was fantastic to see them all, and I know we'll keep in touch!

Other than this, I've been writing travel blog, meeting Greg and Stewart for coffees, driving Little N to all sorts of places but mainly jumps training at Sutton, drinking coffee at Sutton with athletes mums, and occasionally actually seeing Stav LOL!