After my last blog entry I was discharged from King's the following day - so an EXCELLENT recovery! (and my freezer is full of ice lollies - got the taste!!)...
The steroids came down to 20mg, then, more recently to 15mg and in 2 weeks time, I will be on 12.5mg. The magic number is 10 and under, when the puffa fish face and body should start to calm down. May be a month or 2 away, but it's good to aim for, and my blood results are showing that the drugs are controlling the AIH (autoimmune disease).
On a happier note, the kid's have both finished school and college. Little N did work experience for a few days at a kiddies nursery which she found was hard work trying to keep them entertained all the time. But she's going back at the end of the holidays to do another few days - best contraception ever!!! Little N also went to Turkey for a few weeks and had a truely wonderful time with her friend D and her parents. A HUGE thank you to them all..xx
I have been timkeeping, of course! I was at Copthall for the Southern Multi Event Championships, and at Horsham for a Sussex League. Also Reigate Priory had their Summer 10k (just before last blog) and then there was the Gatton 10k at the end of July.
HOWEVER, the last 2-3 weeks have been spent with my head down! Head down writing the LISTEN Newsletter and the last few amends for the LISTEN leaflet.
I did the full production of the 8 page Newsletter using a Serif programme (quite basic) and I was grabbing pictures off facebook and trawling through my computer in my "picture library"!! I had been collecting leads to articles most of this year with the hope that the Newsletter would come out earlier, but with my handful of trips into King's, this really wasn't feasible. So the deadline was yesterday - the KING'S TRANSPLANT REUNION celebrating 21 years of liver transplants at King's College Hospital. There are two life liver transplant stories of the lovely Maureen, and my own personal mentor, Sue; there's a book review - "Wearing Purple" by Moyra Evan's who's husband Paul had a transplant at King's - there's an article written by one of my consultants and an interview with the Social Worker - a bit about our new website listenatkings.org and about what we've all been doing at LISTEN - and more!
I'm very pleased with the final product and can now start thinking about the next issue! And it was fabulous picking up 1,000 copies from the printers... (if anyone has any ideas for the next issue - send a message through this blog).
It was also exciting to see the first ever LISTEN leaflet. Months of writing and rewriting the copy, getting it authorised; then deciding it didn't look the best it could - then passing over to my graphic design friend Andrew (drivecreative.co.uk) - and watching the amazing transformation he performed! WOW...
All this does make me miss brochure production, which I did for a number of years....
On Saturday, Stav and I met up with Paul and Pam from Plymouth (the WEST). It was so lovely to meet the couple who I've been friends with on Facebook for the last year, following an article I put in the last LISTEN Newsletter - Paul's story of transplant. We had a wonderful afternoon walking through Borough Market, drinking coffee, and strolling along the South Bank (they're from the west- we're from the east - sort of...).
Yesterday was the Anniversary of 21 years of Liver Transplants at King's College Hospital - and the Transplant Reunion. I'm going to write a separate blog later with lots of pictures I took. But just to say - it was an amazing day..
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