Started the day with my new cocktail of drugs (which I'm sure to many, isn't much) - but 40mg steroids, 750mg MMF, 1mg tac, 15mg stomach stuff, calcium (13 tablets in all). My cheeks and chin are expanding with the high steroids as is the top of my back - but this is usual. My hair is continuing to fall out, but this has happened before (about 6 months post transplant), and it does stop before many people notice but my hair brush is full and I have to keep my hair tied up or it flies into everything..yuck! Last time my usually straight hair grew back curly - wonder what will happen this time??
Little N was very happy this week when she jumped 1.58m - her personal best in the high jump - at a local schools district sports day (she won by about 13cm). We travel to Sutton 3x a week so she can receive specialist training and today was an unusually early 9.15am training session start. With the sun shining, off we went.
Having raced home after training (about 35 mins drive) and dropped Little N off, it was time for me to head to Kingsmeadow Athletics Track, as Hercules Wimbledon AC had asked me to timekeep for them at the Southerns Men League.
I have been a UKA Timekeeper for nearly two years now - quite a baby in the scheme of things - as most officials of this discipline have 10-20-30-40 years experience! I, as they do, give my time free of charge and expect nothing back except a smile and a thank you! It has been an honour to work with such experienced people, and I really enjoy their company (wherever I have been timekeeping).
The afternoon at Kingsmeadow started in what felt like a heat wave - but by around 4pm - bloomin' 'eck it got cold! What had happened to the sun?
For about the 7th consecutive time this year Mr DT was "my" chief (athletics is very hierarchical) - and the afternoon went exceedingly well (no photofinish today). Unusually there were 3 females on the stand (very male orientated discipline) plus Mr DT.
Back home, our Tibetan Terrier, Summer, was very pleased to see me (she sits on my hip like a toddler), and I caught the end of Dr Who of which I am a great fan! To the family's annoyance, I have to sing the theme tune everytime I hear it, VERY loudly. It would be great if Summer would join me too...LOL...
If you wonder what 42 - Life, Universe, Everything means, read/watch The Hitchhikers Guide to the Galaxy. What is the meaning of Life, the Universe, Everything? Why "42" of course!! Also, it is how old I will be in a few months (even more scary)...
I love it!
ReplyDeleteI don't mean I love all you have been through and must continue to go through.
I love to have such a thoughtful and readable blog to look at.
Like you I left names out at first - just called myself Grandma P, married to Grandad B.
Since then I have used Christian names - for my blog is mostly only read by the family and friends who I tell about it.
If a complete stranger finds it and enjoys it then the Christian names would mean nothing - I hope.
Glad you had a good time on the timekeeping steps.
Congratulations to little N.
Love Paula.
Brilliant. not so sure about the monika little N.
ReplyDeleteGoodness Donna, I'm not sure I'm ready for this much information about you and the disease. A lot of our comrades in transplant bury the realities of our continuing existence and our dependence on various drugs and the pure chance that whatever laid us low in the first place will not recur. I always take the view that my first liver lasted 55 years so I may need a second one when I am 110! This will cause some discussion at our next meet. Wishing you well. Cheers Martin (The Accountant)
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